I am trying to locate relatives who may have also inherited a genetic retinal disease.
My 10 year old son has been diagnosed with retinitis pigmentosa.
This is what we know:
My maternal grandfather Harold Lamb and his brother Reginald Lamb both had a progressive retinal disease. My mother was never told a diagnosis for what they had but she was told that a doctor had mapped out the illness and that females were carriers who could pass it onto sons. Both were born in Blackpool before emigrating to Canada as children. We do not know who else had the eye disease.
My maternal grandfather's mother was a Butler. Her mother was a Harrison. From what I have found, they had multiple generations in the Liverpool area. We would be very interested in connecting with family who also inherited the gene for Retinitis Pigmentosa.