I had a tough time with it growing up. I hope my daughters can accept it better than I could.
My aunt traced our line of the syndrome back to France. Members of my distant family did certainly end up in Quebec. There were a lot of female children, so the original family name was hard to follow as most acquired new married names.
I have just started digging into this and have piles of information she has provided me that I need to sort through.
There may possibly be a link?
Feel free to email me (firstname.lastname@example.org