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RE-Cystic Fibrosis

Replies: 7

Re: RE-Cystic Fibrosis

Posted: 1518020883000
Classification: Query
Surnames: Brown, Harris
I have traced the mutation gene for cystic fibrosis back to my ancestors Thomas Lee Brown( - 1831) or his wife Ailsey Elley Harris (Brown) ((1781-1840) through three different branches of my tree. My grandson has CF and that is how I got interested in tracing it back. There was a saying back in Germany 1700's about kissing a salty baby and death soon to prevail. Most death certificates before mid 1900's could diagnose a TB, whooping cough, influenza, etc. I looked a families with many infant or young child deaths trying to determine if CF was the possible COD as a start to researching more. My best information has come from obituaries with memorial contributions to CF, looking at their family tree and comparing to mine or contacting them directly if possible. My JOHNSON tree is public (I think) and you should be able to view the connections (those with CF have a CF purple ribbon and those whom are carriers are puzzle pieces with CF on them). Any information would be greatly appreciated. It took 9 generations in our family for the CF gene to be recognized and I know that there are many others who have no idea that they are carriers until a child is actually born with CF - with no cure this is too late to find out.

Denise - Indianapolis
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