My grandmother was a Clouston from Canada and I was recently diagnosed with a genetic disease called CMT. It appears two of my brothers, one son (out of 2) and one grandchild also have it. My son
Chris has recently become the head of the CMT branch in Western NY. My belief is that people with undiagnosed symptoms in this family believe they have something called "Clouston syndrome" but in fact do not. CMT is very close to having a cure identified.
If any one is interested in learning more about this disease or want to compare symptoms, get a diagnosis etc feel free to be in touch with me..