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Clouston syndrome in families from Quebec Province, Canada

Replies: 16

Re: Objet : Clouston syndrome in families from ead Province, Canada

Posted: 1432937558000
Classification: Query
My grandmother was a Clouston from Canada and I was recently diagnosed with a genetic disease called CMT. It appears two of my brothers, one son (out of 2) and one grandchild also have it. My son
Chris has recently become the head of the CMT branch in Western NY. My belief is that people with undiagnosed symptoms in this family believe they have something called "Clouston syndrome" but in fact do not. CMT is very close to having a cure identified.

If any one is interested in learning more about this disease or want to compare symptoms, get a diagnosis etc feel free to be in touch with me..
SubjectAuthorDate Posted
therese dillo... 1432937558000 
lalumiere50 1432950619000 
lalumiere50 1433115338000 
therese dillo... 1433246985000 
lalumiere50 1433284812000 
Brigitte Lamo... 1426272303000 
martinsen073 1549514098000 
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